Children with mental illness facing long wait times for diagnosis

List of mental Disorders in children

Syndromes / October 15, 2016

  • National surveys have large sample sizes that are needed to create estimates at the national and state levels. However, they also generally use a parent’s report of the child’s diagnosis, which means that the healthcare provider has to give an accurate diagnosis and the parent has to accurately remember what it was.
  • Community-based studies offer the opportunity to observe children’s symptoms, which means that even children who have not been diagnosed or do not have the right diagnosis could be found. However, these studies are typically done in small geographic areas, so findings are not necessarily the same in other communities.
  • Administrative claims are typically very large datasets with information on diagnosis and treatment directly from the providers, which allows tracking changes over time. Because they are recorded for billing purposes, diagnoses or services that would not be reimbursed from the specific health insurance might not be recorded in the data.

Using different sources of data together provides more information because it is possible to describe the following:

  • Children with a diagnosed condition compared to children who have the same symptoms, but are not diagnosed
  • Differences between populations with or without health insurance
  • How estimates for mental health disorders change over time

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National data on children’s mental health

A comprehensive report from the Centers for Disease Control and Prevention (CDC), Mental Health Surveillance Among ChildrenUnited States, 20052011, described federal efforts on monitoring mental disorders, and presented estimates of the number of children with specific mental disorders. The report was developed in collaboration with the Substance Abuse and Mental Health Services Administration (SAMHSA), the National Institute of Mental Health (NIMH), and the Health Resources and Services Administration (HRSA). The report is an important step towards better understanding these disorders and the impact they have on children. This is the first report to describe the number of U.S. children aged 3–17 years who have specific mental disorders, compiling information from different data sources covering the period 2005–2011. You can read a summary of the findings here.

The goal is now to build on the strengths of federal agencies serving children with mental disorders to:

  • Develop better ways to document how many children have these disorders,
  • Better understand the impacts of mental disorders,
  • Inform needs for treatment and intervention strategies, and
  • Promote the mental health of children.

This report is an important step on the road to recognizing the impact of childhood mental disorders and developing a public health approach to address children’s mental health.

Project to Learn About Youth – Mental Health
Project to Learn abou Youth PLAY logo

The Project to Learn About Youth – Mental Health (PLAY-MH) is taking place in four communities. The focus is to study attention-deficit/hyperactivity disorder (ADHD) and other externalizing and internalizing disorders, as well as tic disorders in school-aged children. The project will provide valuable information that can be used for public health prevention and intervention strategies to support children’s health and development.

Study questions include:

  • What percentage of children in the community has one or more externalizing, internalizing, or tic disorders?
  • How frequently do these disorders appear together?
  • What types of treatment are children receiving in their communities?
Other research

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Holbrook JR, Bitsko RB, Danielson ML, Visser SN. Interpreting the Prevalence of Mental Disorders in Children: Tribulation and Triangulation. Health Promotion Practice. Published online November 15, 2016 .